Our Savior's Lutheran Church, 550 Lincoln Drive., will host a benefit concert at 3 p.m. on Sunday, Feb. 18 to benefit the National Spasmodic Dysphonia Association (NSDA).
A Marshall woman, Diane Padrutt, helped to organize the concert featuring her brother, who suffers from spasmodic dysphonia. Warren Bandel will be performing as part of The Classic Brass Quintet.
Admission is free, but a freewill offering will be accepted to benefit NSDA.
Padrutt said her brother came to Our Savior's last fall and met with church officials, including music director John Krueger, about hosting the concert. Padrutt is a 30-plus year member of the church and knows the church hosts music-related events for charity, including the annual Food Pantry Concert each December.
"He had the idea of doing a concert for a fundraiser," Padrutt said of her brother, who recently joined the NSDA board. Bandel started having symptoms of the spasmodic dysphonia (SD) when he was in sixth grade. Although it took him a long time to accept his disease, Bandel received surgery in 1996 that eased the tension and made speaking less physically demanding.
Bandel held his first NSDA benefit concert in Rochester, Minn., in 2015 with the Classic Brass Quintet - which continues to hold an annual event there. The Sun Prairie concert is among the first stops for the Classic Brass Quintet, which will also be performing in a variety of locations including Seattle, San Diego and Greenville, SC.
To help increase awareness and education about spasmodic dysphonia, the NSDA sponsors various programs throughout the year, including the concert series.
According to the NSDA website, the NSDA is a not-for profit 501(c)3 organization founded in 1989 and dedicated to advancing medical research into the causes of and treatments for SD.
Spasmodic dysphonia belongs to a family of neurological disorders called dystonias.
A dystonia is a movement disorder that causes muscles to contract and spasm involuntarily. Dystonias can be generalized, affecting the entire body, or focal, affecting only a specific area of the body or group of muscles. Following Parkinson's disease and essential tremor, dystonia is the third most common movement disorder, according to NSDA.
SD is estimated to affect approximately 50,000 people in North America, according to NSDA, but that amount may be somewhat inaccurate due to ongoing misdiagnosis or undiagnosed cases of the disorder.
Although it can start at any time during life, SD seems to begin more often when people are middle-aged.
SD affects women more often than men, with onset usually gradual with no obvious explanation.
NSDA says on its website that symptoms usually occur in the absence of any structural abnormality of the larynx, such as nodules, polyps, carcinogens, or inflammation
The association also promotes physician and public awareness of the disorder, and provides support to those affected by SD through symposiums, support groups, and online resources.
NSDA is comprised of people with SD, healthcare professionals, volunteers, friends, and families. It is the only organization dedicated solely to the SD community.
The concert will be preceded by remarks from Dr. Michael Hammer, who is director of the Airway Sensory Physiology Laboratory at UW-Whitewater, and Kimberly Kuman, executive director of the NSDA. Kuman will describe NSDA's purpose.
The concert is sponsored by Our Savior's Lutheran Church, Thrivent Financial, Anjanette and Warren Bandel, Diane and Joe Padrutt and the Classic Brass Quintet.
For more information about SD, check the NSDA website at www.dysphonia.org.